On Sunday we ended back up in the ER. Kev was having some loss of control and strength in his left hand/arm and after speaking with his Drs, it was decided to go in for an assessment. Nothing much has happened so far. They pretty much agree that this could be caused by what’s going on in the brain or the spine or both so surgery doesn’t seem like such a good idea especially when surgical risks are accounted for. Radiation is still on the table - both stereotactic or full brain but any of these options would just further delay the possibility of entering a trial. So it seems like the decision we made on Friday – enter into the trial with Targeted Therapy if accepted and consider radiation if not accepted – is still the best. But that being said, Kev’s regular neurosurgeon was not available for consult today, so we’ll speak with him tomorrow and then make a final decision.
On a favorable note, the strength/control loss he experienced on Sunday has not further degraded, nor has it affected the right side. So hopefully it has stabilized. They have him on high dose steroids again to see if that helps. Thanks for all the payers and positive thoughts. Kev is understandably anxious about this latest development, but is doing well.
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Daneen - I'm commuting to MD Anderson the next few weeks and if you need me to transport anything (people or stuff)...let me know (713 249 6393)! My daughter is having her monthly on-going tests through mid-July. Let me know if I can help in any way! Tell Kevin I said, "Hi!" Terri (Graham) Puckett
Dear Kevin and Deneen--Big doses of prayers and supportive wishes from AJ and me! Keep your morale high, you have navigated this pourney so incredibly well placing yourself in the best position possible at each step. We love you, Michelle
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